Wednesday 17th February 2010

Luke had a pretty good night however he did get woken up at 3am to get blood taken. They need to test it 12 hours after the protein injection. Don't you think the nurses could have timed it a bit better and given him the injection at say 10am so that he could be re-tested at 10pm???? Just a thought!!!!

Luke's blood sugar is good today 5.8 so it would appear that the reduction in the steroid dose has helped. His weight is staying steady at 79.5kg.

His blood levels today are:
Haemaglobin 87 / White Cell Count 0.8 /Platelets 110 /Neutrophils 0.13.
The other day he was close to needing a blood transfusion so it is great to see his body seems to be increasing the haemaglobin and platelets by itself.

He had his "bee sting" chemo today - he had the choice of having it early or later in the day and decided he prefers it later.
He also had 10 bags of cryoprecipitate for blood clotting.

I made him scrambled eggs for breakfast this morning and he was full all morning - so maybe that's how we can fill him up.

Amy and I had an appointment this afternoon with the psychologist. We missed her last week when she came and visited the boys and they told her "you're seeing the wrong person - Mum's the one who needs help!!" We had a nice chat and I'm glad to say I wasn't committed to the psych ward - just yet anyway!!

Murray and I also had an education session with the haematology co-ordinator. She explained some things in simple language and that helped fill in a few blanks for us.
Now we just need to talk to the DR to fill in a few other questions that we have.