Thursday 29th July, 2010

Great news again, Luke is still in remission. It is a very uplifting to know that after 3 cycles of chemo he is still keeping this disease at bay. It's hard to imagine that this all started 6 months ago. After having our world turned upside down, we have all had to adapt and I can truly say we have now settled into our new life of juggling hospital visits, work and life in general. Luke's still got a lot ahead of him. The next 6 months of intensive chemo are going to knock him around, he'll have good days and bad days.

Luke started chemo yesterday. He had a lumbar puncture under x-ray. he also has Methotrexate injected into his spinal fluid at the same time to kill any traces in the spine going to the brain. We had a 10am appointment and as often is the norm, things were running late. So he didn't go down to x-ray till 12. He then should lie on his back for 4 hours after the procedure but he generally feels okay and we left after about 3 hours. During his time waiting on his back he had his other 2 chemos for the day via the central line, Vincristine and Doxorubicin.
He's back on steroids for this cycle, Dexamethasone. This is a different steroid from the one he took during his first cycle. So it will be interesting to see if he gets the moon face and the outrageous appetite he did before! The other chemo drug he will have this cycle is L-Asparaginase. This is the one in the backside that he says feels like an extremely painful bee sting.
He's feeling a bit yuck today. He always does when he starts back on chemo after having a nice break.
I'll update you probably in a few weeks unless there is something else to tell in the meantime.